Bloodbourne Halitosis

[hali_grl]

I'm not sure how many of us expel room filling bb that can be smelled yards away even when your mouth is closed but I am in that club. I've always ruled out blood bourne halitosis for some reason that I cannot even think of right now. Perhaps because it just sounded impossible and far fetched. But after doing some research last night and learning more and more about what causes us to expel such toxic gases it only makes since now. There is a metabolic disorder known as Dimethylsulfidemia which is an excess of a chemical called Dimethyl sulfide in the blood. Our hearts pump blood and oxygen into our lungs and in this transaction of gases Dimethyl sulfide if in excess can also be expelled through the lungs and on the breath. Dimethylsulfidemia is usually caused by Hypermethioninemia which is an excess an amino acid called methionine. Basically, with methionine not being broken down properly the amino acid can be synthesized from methionine into Dimethyl sulfide. Dimethyl sulfide odor is said to vary depending on the concentration from rotten cabbage, musty, moldy yeasty, to sweetly fecal and highly unpleasant. Because Dimethyl sulfide is an irritant toxic gas this may explain ppl's reactions such as coughing, sneezing, clearing sinuses, etc. Dimethylsulfidemia can also be the reason for fecal body odor when TMAU has been ruled out or sometimes in combination with TMAU sufferers. There are no other signs of Dimethylsulfidemia other than odor problems as well as with hypermethioninemia. From what I've read high dose vitamin b6 (Niacin) can be used sometimes with some good results but on rare occasions.

So the good news is that for us room filling, nose and mouth bb sufferers researchers have found the cause for mostly all cases. But the bad news is that there is really no cure out or any reasonable suggestions or theories on what might work other than b6. Currently, MEBO is doing research on this so hopefully we will find something out soon.

Here is a video from MEBO explaining more:
http://www.youtube.com/watch?v=y9Xkr-IIBgY

[hali_grl]

Wow, the more I'm looking into this the more interesting it becomes. From what I read when there is a block in the pathway of metabolizing Methionine into cysteine this can cause an elevated level of Methionine in the body. Some research seem to suggest L-thyroxine can normalize homocysteine levels if patient has hypothyroidism. Guess what is one of the ingredients in my thyroid glandulars I was taking T4 (levothyroxine aka l-thyroxine)! That seems to explain why I was cured while taking them! Even though it did not address the root of this enzyme deficiency.

[mike987]

Sorry hali_grl, you're too late. The community has chosen Demonic Possession as the cause of Bad breath.

I'm not sure if bloodborne fits my situation, but often when I'm all sweaty and I get home, I'm breathing hard, I can 'feel' a kind of sewery smell around me, it almost doesn't even feel like it's exclusive to coming from my mouth...

But I've never thought I've had BO...


Could the problem be solved with enough money? Has anyone considered a website like 'Kickstarter' for funding research on this??

[hali_grl]

Mike
Lol! I never thought blood bourne halitosis was my problem either. I always thought the smell was coming from my sinuses, tonsils, and throat. But I have ruled those things out completely now. I also notice an aroma of sewage around me especially if I leave one room and go into another. Or when I'm in my car with the AC on the smell is kicked back on me, if that makes sense. I no longer believe this is coming from my mouth or nose I am actually breathing this stuff out of my lungs. In the video I posted from MEBO it stated that blood bourne halitosis is actually the most common type of extra-oral halitosis. So upper and lower respiratory problems should actually be looked at lastly compared to first as we all do. We have it backwards which is probably why most of us don't find permanent relief. But it is so much easier to try to probe upper and lower respiratory being that their are specialist and ent's so ready to dig, operate, and prescribed. Compared to it hardly being anything on blood bourne halitosis. Hoepfully, MEBO will change all that soon...I sent out my protest emails today.

[hali_grl]

MEBO is currently trying to get funding for research on fecal bacteriotheraphy/human probiotic infusion as treatment for bb and bo. It's funny because I remember having a conversation with a member on this forum regarding a theory I heard awhile back on how colonics or enemas done with poo from breast feed babies was said to be probiotics on steroids because it replenishes our bodies with good gut flora and allows our bodies homeostatis to get back on track. I'm not sure what MEBO has in mind but it seems my paradigm was on the right track.

[deebo]

H-G
thanks for sending out your emails to the UK officials .
If nothing else ,the awareness it brings to malodor can help us all worldwide .

There has been testing going on in Chicago , Florida and coming up here in Seattle ,UK and elsewhere to help understand more about blood borne malodor .

It take effort to refrain from useless speculation and dig into the facts . And its good to group with and support people who are doing just that . Actual research .

[hali_grl]

You are right we should support MEBO and there cause for the longest time I've never considered blood boure halitosis as a cause for me. I do think we should all look into this more seriously. I hope our emails do help in the cause in the meantime I'm tired of sitting around smelling like I'm decaying. I'm ready to fight and try to beat this thing by finding out what works.

[meowkity1]

This post reminds me of a long time ago when my ex boyfriend told me that my skin smelled like a hospital. (weird) Im still doing fairly well with my bb but I have been thinking of trying oxygenation, preferably drinking oxygenated water. I also feel its blood borne especially because I was constipated from early childhood upto a couple of years ago when I found out constipation wasnt normal . Though I did have tonsil stones and tonsils removed which cured me 90%. I also had a fiilling that fell out and there were toxic fumes coming out until I got it fixed, which could have also effected my blood.

[sctsum]

After 3 years of bo/bb, I finally deduced the problem to faulty liver, methionine/homocysteine to H2S or similar compounds.

Faulty metabolism in elimination of methionine/homocysteine.
I just ordered VitB6, B12, B9 complex with TMG to help reduce. Lets see how this goes.

BTW VitB3 is niacin, Not VitB6.

[pinane]

Sctsum please keep us updated on the results. I am going to buy some T4 and test if it is effective for me.

[thissux]

So what is the verdict on this bloodbourne condition? I was given bloodwork at some point in this journey and results show or looks to be hypothyroid. If you took the medication and it worked for you, can I ask why you stopped or did the thyroid medication stop working for the odor? Please let me know. I am having problems with every kind of digestion, urine odor, horrible tasting dry mouth...seems to be getting worse all. Does hypothyroid cause halitosis? Also, my Dad has hypothyroid and is on medication for it, he does not smell though so it does run in my family. Thanks all, thissux

[Tee]

It's sad how people disappear on BB forums. This post is 9 years old..it will have helped a lot of us if some folks will simply leave feedback on stuff they've tried.

[StillHoping]

It's sad how people disappear on BB forums. This post is 9 years old..it will have helped a lot of us if some folks will simply leave feedback on stuff they've tried.

I agree, I wish people would atleast give some update before disappearing

[StillHoping]

Very interesting!! I'm surprised I have not come across this post before.

After googling Hypermethioninemia, this is from the wiki page: "People with hypermethioninemia often do not show any symptoms...Some individuals with hypermethioninemia exhibit...liver problems; unusual facial features; and their breath, sweat, or urine may have a smell resembling boiled cabbage...Hypermethioninemia can occur...from liver disease or excessive dietary intake of methionine from consuming large amounts of protein or a methionine-enriched infant formula..."

Another user [bobi] just posted recently that they had found some relief from eliminating protein from their diet. I wonder if anyone else here has good experience with eliminating protein and/or using Vitamin B6??

Also it says it can be caused by a "methionine-enriched infant formula". It would be interesting to know what type of diet we were all fed as babies?? especially for those whose bb developed around age 10/11. Although it also says it can be genetic, so who even knows

[meerkat]

You want to be careful taking vitamin b6 supplements, its one of the vitamins that can be dangerous if you take too much, it can cause nerve damage.

Also 'cutting out' protein is not an option, we need to consume protein to live.

I know we're desparate, but lets at least try to keep things safe.