What have I done so far

[Keep Smiling]

Hi every one, I have just found this forum few weeks ago and I have decided to be part of it, I hope I can be helpful

I notice that I have this issue from Puberty. So I did like most people do; I went to the dentist; my teeth condition where not the best I had one root problem and few cavities. Fixed them all and started to focus more in my oral hygiene "mouthwash, floss, tongue brush". It wasn’t enough to solve the problem.

I started looking for the problem by myself. I placed a paper tissue over each teeth row on the top and sides bite it for few minutes and smell. By doing that I have noticed that the smell comes from my wisdom teeth although the dentist says he can’t see any problem with it (I did X-ray). I told him to just to remove it.

My breath improved afterwards but after one or two weeks I kept doing the tissue test and another tooth starting to have the same problem until I removed all wisdom teeth (although I used to take care of my oral hygiene). I also did Mouth swap; came clean.

Also another thing when I used to floss between my crown teeth I have noticed a weird smell. The dentist said that some people have allergy to metal crowns so I replaced it with another type and the other one wasn’t properly placed “it had gaps”.

I have noticed that I always had yellow/green mucus. ENT prescribed anti-biotic and other medication as they stated that I have some sort of Congestion on the top of my nose; the mucus reduced but not by much and became white. I also did MRI scan to check my sinuses; the report came clean. Also did Nasal Endoscopy he found the septum is deviated. And Checked my nasal for any infection (I don’t remember exactly how but the doctor took a tissue or something from my nose). I had white coating over my tongue the doctor prescribed syrup then pills “it wasn’t effective enough”.

Next I started looking at the back of my tongue using my finger where I noticed my tonsils had very bad odor, went to ENT doctor and decided to remove them. I after tonsillectomy I felt much better.

Next I went to a gastroenterologists doctor, I did the urea breath test for H. pylori; it turned out to be positive. Took medications did the test again it came negative.

I have always had sore taste in my mouth and burning sensation in the throat that in some nights I wake up brush my mouth to be able to sleep. I went to gastroenterologists did endoscopy and barium meal x-ray. I had severe acid reflex. The doctors said that my lower esophageal sphincter (LES) muscle is weak and some stated that I have hiatal hernia while some think I don’t. Any way I took gastro-resistant tablets for a long time but not much improvement, so I decided to do laparoscopic surgery.

After the laparoscopy I couldn’t smell much of bad breath and post nasal drip reduced dramatically and became almost transparent, I used to do fillings for my teeth from time to time (although I used to take care of my oral hygiene) this stopped after the surgery “most likely it was due to acid wear”

Next I went to pulmonologist; did high resolution CT to the lunge; Came clean.

Did liver test and my Bilirubin was high seen few doctors and all stated that I have Gilbert's syndrome (which is not known to cause any type of odor) other enzymes are normal. The kidney they say is good. I did Ultra sound for abdomen the doctor says he can`t see anything wrong. Also did blood test for diabetes (fasting plasma glucose “FPG”), Phosphorus levels and Uremia; all ok.

Recently I went to Doctor Murat in Turkey he told me that I have type 2(nasal) and type 4(breath “blood bone”) halitosis. Mainly I have type 4 he said as in type 2 he detected H2 (hydrogen) which is odorless but it indicates that there is some bacteria in the nasal cavity which he also noticed when he looked at my MRI SCAN but told me to properly seek ENT specialist to confirm it.

Recently as well I did TMAU test we don’t have this in our country I shipped a urine sample to the US (MEBO Research), the result will be out on the 1st of July.

Currently I am seeking gastroenterologists doctors to find the problem that causes type 4 halitosis. Now they took again few blood sample and they might do colonoscopy or try to take a tissue of the liver if the blood test shows something suspicions. Also the doctor told me to get Rifaximin from one of the countries not very close to ours. Currently I am taking Agiolax to regulate my bowel.

Next on my list is:
- SIBO, Lactose, Fructose and Sucrose hydrogen breath test. We don’t have this test going to get it online (already in contact with supplier).
-Candida overgrowth (did IgG only, not sure how to get the rest IgA, and IgM candida anti-bodies) or I might look for other ways for diagnosis.
-Septoplasty and remove the cause of type 2 alongside with adenoid.
-Plasma amino acids Test, not sure where can I do that or if it is enough to diagnosis these:
Glycine N-methyltransferase deficiency (hypermethionemia) / hypertyrosinemia / Phenylketonuria
-Same here have no idea how to check for these: MULTIPLE ACYL-CoA DEHYDROGENASE DEFICIENCY; MADD / Methionine adenosyltransferase deficiency

What do you think guys, is there is anything els I am missing, Please don’t hesitate to ask or suggest anything.

[suffering]

even after all those procedures you're STILL suffering from BB???

it seems in some point you got better then bad again? so confused.

[Atrial]

Hi every one, I have just found this forum few weeks ago and I have decided to be part of it, I hope I can be helpful

I notice that I have this issue from Puberty. So I did like most people do; I went to the dentist; my teeth condition where not the best I had one root problem and few cavities. Fixed them all and started to focus more in my oral hygiene "mouthwash, floss, tongue brush". It wasn’t enough to solve the problem.

I started looking for the problem by myself. I placed a paper tissue over each teeth row on the top and sides bite it for few minutes and smell. By doing that I have noticed that the smell comes from my wisdom teeth although the dentist says he can’t see any problem with it (I did X-ray). I told him to just to remove it.

My breath improved afterwards but after one or two weeks I kept doing the tissue test and another tooth starting to have the same problem until I removed all wisdom teeth (although I used to take care of my oral hygiene). I also did Mouth swap; came clean.

Also another thing when I used to floss between my crown teeth I have noticed a weird smell. The dentist said that some people have allergy to metal crowns so I replaced it with another type and the other one wasn’t properly placed “it had gaps”.

I have noticed that I always had yellow/green mucus. ENT prescribed anti-biotic and other medication as they stated that I have some sort of Congestion on the top of my nose; the mucus reduced but not by much and became white. I also did MRI scan to check my sinuses; the report came clean. Also did Nasal Endoscopy he found the septum is deviated. And Checked my nasal for any infection (I don’t remember exactly how but the doctor took a tissue or something from my nose). I had white coating over my tongue the doctor prescribed syrup then pills “it wasn’t effective enough”.

Next I started looking at the back of my tongue using my finger where I noticed my tonsils had very bad odor, went to ENT doctor and decided to remove them. I after tonsillectomy I felt much better.

Next I went to a gastroenterologists doctor, I did the urea breath test for H. pylori; it turned out to be positive. Took medications did the test again it came negative.

I have always had sore taste in my mouth and burning sensation in the throat that in some nights I wake up brush my mouth to be able to sleep. I went to gastroenterologists did endoscopy and barium meal x-ray. I had severe acid reflex. The doctors said that my lower esophageal sphincter (LES) muscle is weak and some stated that I have hiatal hernia while some think I don’t. Any way I took gastro-resistant tablets for a long time but not much improvement, so I decided to do laparoscopic surgery.

After the laparoscopy I couldn’t smell much of bad breath and post nasal drip reduced dramatically and became almost transparent, I used to do fillings for my teeth from time to time (although I used to take care of my oral hygiene) this stopped after the surgery “most likely it was due to acid wear”

Next I went to pulmonologist; did high resolution CT to the lunge; Came clean.

Did liver test and my Bilirubin was high seen few doctors and all stated that I have Gilbert's syndrome (which is not known to cause any type of odor) other enzymes are normal. The kidney they say is good. I did Ultra sound for abdomen the doctor says he can`t see anything wrong. Also did blood test for diabetes (fasting plasma glucose “FPG”), Phosphorus levels and Uremia; all ok.

Recently I went to Doctor Murat in Turkey he told me that I have type 2(nasal) and type 4(breath “blood bone”) halitosis. Mainly I have type 4 he said as in type 2 he detected H2 (hydrogen) which is odorless but it indicates that there is some bacteria in the nasal cavity which he also noticed when he looked at my MRI SCAN but told me to properly seek ENT specialist to confirm it.

Recently as well I did TMAU test we don’t have this in our country I shipped a urine sample to the US (MEBO Research), the result will be out on the 1st of July.

Currently I am seeking gastroenterologists doctors to find the problem that causes type 4 halitosis. Now they took again few blood sample and they might do colonoscopy or try to take a tissue of the liver if the blood test shows something suspicions. Also the doctor told me to get Rifaximin from one of the countries not very close to ours. Currently I am taking Agiolax to regulate my bowel.

Next on my list is:
- SIBO, Lactose, Fructose and Sucrose hydrogen breath test. We don’t have this test going to get it online (already in contact with supplier).
-Candida overgrowth (did IgG only, not sure how to get the rest IgA, and IgM candida anti-bodies) or I might look for other ways for diagnosis.
-Septoplasty and remove the cause of type 2 alongside with adenoid.
-Plasma amino acids Test, not sure where can I do that or if it is enough to diagnosis these:
Glycine N-methyltransferase deficiency (hypermethionemia) / hypertyrosinemia / Phenylketonuria
-Same here have no idea how to check for these: MULTIPLE ACYL-CoA DEHYDROGENASE DEFICIENCY; MADD / Methionine adenosyltransferase deficiency

What do you think guys, is there is anything els I am missing, Please don’t hesitate to ask or suggest anything.

I think the best decision you made is the tmau test
There is a 99 % chance your tmau test will be positive some people in this site are in denial so your test can prove that tmau and adenoids are the main cause of chronic bb.

You sound like you're very wealthy or your family is wealthy.

[Keep Smiling]

even after all those procedures you're STILL suffering from BB???

it seems in some point you got better then bad again? so confused.

Every procedure I did I felt a bit better ,But with time i feel it is getting worst. It`s like I cant catch up with it. I am sure it is confusing but this is how it is.

I think the best decision you made is the tmau test
There is a 99 % chance your tmau test will be positive some people in this site are in denial so your test can prove that tmau and adenoids are the main cause of chronic bb.

You sound like you're very wealthy or your family is wealthy.

Everything is possible time will tell.

Not really, My salary at one stage was as low as 130$ per Month. I am trying to do my best and it took me years to do all these things.

[Cres]

Out of all those things I personally only had my stomach and small intestines checked, and some basic stuff. And there was no candida in my mouth, no helicobacter in stomach either. Doctors won't check my lungs because they think I'm bullshitting or mentally ill. So in that sense you've had it better, you have narrowed down the causes for your halitosis a lot more. I'd need the ~£190 to do the TMAU test but I'm poor, hopefully next month I'm not as broke as I am now. This condition is so goddamn cruel, I recently started hanging out with an ex and I want to get together with her again, but I still get reactions (and obvious lies about me not having BB) from everyone and it's embarrassing.

I look forward to read about your TMAU test result, I too want to do it so badly.

[Keep Smiling]

Cres:

If you live in the UK I think you can do the TMAU test for free in the NHS

[halitosisux]

Wow that's a lot of ruling out you've been busy with there.
What a shame it isn't possible to just be able to test how much Triethylamine (TMA) is actually in the breath. Having TMA in the breath doesn't mean a person has TMAU though, that's why it's not used for diagnosis of TMAU. But it would sure help a lot of people just to know what concentration is being exhaled to have some idea of what is is happening.

Remember, TMA is contained in foods like fish, but it is mostly produced as a bacterial by-product by gut bacteria. Everyone produces it. But, the body normally then deals with it in the liver after it's been absorbed into the bloodstream. Foods rich in "precursor" chemicals like choline (eggs for example) get converted into TMA in the gut by the gut bacteria. Eat enough eggs and anyone will start to smell because the body's ability to convert TMA into TMAO (the oxidized odourless form of Triethylamine) becomes overwhelmed and TMA will build up in the blood. This applies to any person.

If you happen to have a diminished capability to do this chemical converting, or, for example, a lot more of the types of bacteria that produce TMA, then it will build up in the blood, even without eating a lot of the "precursor" chemicals, and then may come out from the lungs, urine, and secretions like sweat, SALIVA and MUCUS. Genetics, digestive issues, enzyme dysfunction or abnormality, hormonal imbalance and DIET - they can all affect what happens. Some foods and supplements can help by neutralizing the TMA in the intestines (green leafy foods) but yet things like broccoli apparently make the problem worse because they adversely affect the enzymes that normally oxidize the TMA.

Why am I saying this? Because a very simple way that may help to find out whether TMA has anything to do with your own particular problem, is to spend a couple of days on a diet that contains minimal TMA "precursor" chemicals (Google thems). Then for a couple of days, take choline supplements (from any healthfood store). Depending on what happens, this may give a clue as to whether or not your problem relates to TMA or not.

Don't forget, a test for TMAU is not simple a YES or a NO because it totally depends on the cause and the levels of TMA involved. TMA happens to be a very strong smelling chemical that human noses are very good at detecting, even in minute concentrations. This is where there's a LOT of confusion, not just from sufferers, but also from the researchers who have to set diagnostic standards and determine what is going on for each individual sufferer.

[Keep Smiling]

halitosisux:

First of all I would like to thank you so much for all the effort and time you put to help others with your valuable comments and contributions.

I have been on TMAU Diet for some time now, I am also on Low Fodmap Diet (not 100% though). For once only I noticed that I smell like egg in the day I eat egg for breakfast. Even when I took Choline pills for the TEST I believe it was 3 pills each 500mg (total 1500mg) in addition to 3 eggs on the same day; I haven`t notice a change. I have read that some people with TMAU don`t know by themself that they smell, they knew from other people.

The TMAU test I did is Urine Test where you should take 3 pills of choline then take a urine sample after 12-24 hours.

It can be SIBO or food intolerance or it might be unknown condition. In fact Dr. Murat suspect the reason is the Liver from the readings he got but he said it can be anything.

[halitosisux]

You're welcome, and thanks for saying that.

Amazing to read how much you've done and are still doing. You seem to be very open minded.

You've made some very interesting points there. I don't know whether it's because with TMAU, some TMA may always be coming out from the lungs or contained in mucus, which passes through the nose with every single breath, that this is reason why the sense of smell becomes accustomed/familiarized (I can never think of the right word for that) with a chemical, that it can then no longer detect it.

There may also be other chemicals that appear in the bloodstream in similar ways to TMAU that we don't know about yet. We only know about TMAU because this fishy odour was enough to attract the curiosity of researchers who could take advantage of advancements made in genetic science and testing. Why do we not know about them yet? Because if we did there would likely soon be no reason to buy deodorants or other things relating to the human obsession with cleanliness.

But saying that, maybe you will find out your cause through these eventual tests or through your diligence in what you eat and don't eat.

[Keep Smiling]

It is a sad thing to see how our world obsessed with money. I guess we have to keep trying and hope that one day we will find solutions for everyone.

[Keep Smiling]

::Quick Update::

TMAU Results came negative (if I had Primary TMAU the results might be false because I was on TMAU diet for some Time)

Colonoscopy didn`t show any abnormality, although the doctor checked only 60% of it.

SIBO “Bacteria Overgrowth in the small intestinal” came negative (From what I have read TMAU secondary is caused by SIBO so I have two Confirmations on this)

Lactose Intolerance came positive. (I am already on dairy free diet for some time)

Low acid: I did Betaine HCL test and I think I have low acid.

Stool Culture test didn`t show any abnormality.

Candida saliva test came positive. (From what I have read it is an unreliable test but it might indicate that the body has infection or allergies even for that it’s unreliable) :p


::Next on my list::

Fructose and Sucrose: Did Fructose only waiting for the results.

ORGANIC ACID test: It seems like it is a very useful test.

AMINOACID ANALYSIS PLASMA: To check if there deficiency in one of the amino acids which can cause BB.

CANDIDA ALBICANS ANTIBODIES: Organic Acid might be enough to identify Candida but I might do this as well.



Organic Acid / Amino acid Analysis might be useful. Has anyone done these tests before?

[dick.karma]

Wow that's a lot. I wish I have the same resources (money and time) to have those tests too

You mentioned you visited Dr. Murat, but was it only for the sole purpose of knowing your type of halitosis? I remember he formulated some kind of mouthwash but that's only for type 1. If you have a halitosis type other than 1 then he really can't help you.

[Anne2323]

Any updates?