Hopeless

[StillHoping]

Wow this is interesting. This is a good information, thank you!! It's interesting since a lot of us here got worse through the years ie. out bb worsened.

Yes, I should mention though that her bb returns immediately if she does not drink the lemon water that day. Soo maybe cure isnt the best term but definitely management. It might be a great option to use in the meantime while trying to figure out the cause of your problem [especially if your bb is due to an internal issue]

[whatdidido]

Cres=The problem is, im not sure exactly when this BB started. I know i didn’t while I was in Africa because I was talking and being normal as usual, it was closer to the second week of September as this is when people started making comments and my birthday was just around the corner. So id say there was a 3 month gap…I asked my doctor if this was possible and he laughed it off saying as a ridiculous thought….I didn’t consume anything out of the ordinary but I was sick literally every two weeks at least—vomiting, diarrhea, etc but this to me was normal as my stomach is really choosey with what I eat overseas. Also, im from Africa so ive been exposed to a lot of the bacteria there from a young age! How did you get referred for a panendoscopy? I would like to have one of those but I feel like it’s a lot harder here for referrals then the UK/US/EU. I was referred about 8 months ago to a gastro specialist and I have yet to hear from anybody! smh


Stillhoping= Im in Alberta, how about you? Lol Happy (Belated) Canada day to you as well!! It would have been nice to have celebrated but im literally a hermit now. Im going to try the lemon water, I hate these stomach acid medications—Prevacid stopped my heartburn but it is doing something to my digestion. I’ll let you know how it goes. Let me know what your progress is like! God I cant even taste or smell anything bad in my mouth so its hard to even track my progress other then depending on peoples reaction which isn’t even a reliable practice. Guess its all I can do for now. Are you squeezing juice from a lemon or would the lemon juice in the bottles work? And about how much juice do you think is enough?


Missing Lateral= I will look at your video. Ive never had a tonsil stone but ive heard they can hide in crevasses that are not visible. When I do look at the back of my throat, I see bumps. They aren’t puss filled or anything but there is definite irritation or something going on. Im assuming this is from reflex but im not sure.


I ordered oral biotics and im waiting for them to arrive. Ive read really good reviews but again, most of them had been paid for their review—im super desperate! School will be starting again and I would hate to have it start off like this.

[StillHoping]

whatdidido- that's crazy, I'm in Calgary! I use the pure lemon juice from the bottle; I drink a full glass with about 5 tablespoons of lemon in the morning, and then the same thing with every meal I eat. I have definitely noticed an improvement, which is leading me to think my bb might be due to an internal problem/ possible low stomach acid. Please try and let me know if it helps. You're right, those antacids are not even good for your health in the long term.

However I will be stopping this week for my tonsils/adenoids surgery on Thursday because I want to get an accurate results of the surgery, to see the impact.

[whatdidido]

Good luck with your surgery! How long were you on a wait list for? Ive currently been waiting about 8 months. Please let me know how this goes for you as its the only thing thats keeping me hopeful.

Im starting the lemon water regime today, and i also bought a juicer so i'll be starting with all organic juices as well to cleanse my body. Crossing my fingers..

lol I'm from Calgary too!! I don't really do the whole meeting people off the internet thing, but i really need to talk to someone who is going through what i am and can relate to me. Also, someone who can kind of tell me what kind of smell of giving off, if its nasal or just mouth etc....Would you be up for meeting with me sometime after you've recovered from your surgery? Let me know

[StillHoping]

thank you!! My consultation was in April and they originally told me I would have to wait 6 - 8 months. But I asked to be put on a cancellations list; that's the only reason I got my surgery this early - I guess they had lots of cancellations due to stampede etc.

I won't be able to eat for at least a week minimum, but I too plan on starting a pure juice cleanse diet after that. Good luck, and do keep us posted if it helps.

Yes, I would definitely be open to meet up; atleast we can give each other an honest observation! Wouldn't it be funny if we already know each other lol [I'm originally African also]. I should be fine by August, soo I'll pm you my details in a couple of weeks

[whatdidido]

I am extremely excited to hear how this surgery goes for you. I called my ENT and the office first told me that i would be getting surgery before the fall semester, but now it apparently won't be till november meaning i'll be starting school with this foul smell....its depressing..Who is your ENT if you don't mind me asking?

Im not sure if this juicing has helped me, i haven't been around to many people since i started but i'll be back to work on Friday and should have a better idea based on reactions (although I've started to believe that every reaction is a reaction to my breath these days, and i suppose some people haven't been reacting at all, which is a good thing). How are you holding up? Is tonsil surgery as bad as I've been hearing? Im kind of nervous to get my adenoids, tonsils and septoplasty done at the same time as i feel like it would be hard to breathe lol. Hopefully you're doing just fine.

lol i have a feeling that we do know each other, this city is big but so small at the same time. Although, i can honestly say i don't know anybody with BB, unless you've been hiding out like i have been lol! Yes please make sure you pm me your details, id like to meet up before the summer ends if possible!!

Again, i hope your recovery is going smoothly, msg me as soon as you can

[sun123]

I am in a very similar situation to you regarding bb. I too have tried everything for the last 5 years and I have not seen improvement. Diet does help somewhat but its extremely hard to keep at it, as its a lifestyle change and it costs money, if one does does not have a job (due to bb) then it can be difficult to make ends meet.
I had septoplasty and reduction of the turbinate at the beginning of this year. The result was fantastic I can breath so much better and it did help in nasal areas but I still have bb.

Now I have got to the stage where I finally making the decision to remove my palatine tonsils and adenoids but the difficult thing is to find a doctor willing to do it, as you have to meet certain criteria and I have never had or seen tonsil stones. I live in UK.
I saw an ent surgeon last month and he told me my palatine tonsils have nothing wrong with them and that my adenoids are barely even there, so he was not willing to operate on them. However, and I think this is the key, when he put the camera through my nose to the back of my throat, he saw many white dots on the base of my tongue and he said this could be the reason for your bad breath. So i said how do i get rid of them and he said there is nothing you can do except what may help is doing salt gargles. He also said it is normal to have them dots but I think he just said that. Salt gargles has not helped.

Having read all these forums about people having success removing tonsils and being bb free, I want to do the same. I also think it can be the lingual tonsils that need to be removed (these may be infected and causing the white dots)but not many doctors do this operation, it is very rare. I am finding it hard to find an ent surgeon who operates on lingual tonsils. So now I have just booked an appointment with a normal ent who removes the common palatine tonsils/adenoids and will see what he says next week, if he is willing to go ahead and if he has a solution to the white dots.

If you can and everybody else, ask your ent doctor to put a camera through your nose and see if he can see white spots on the base of your tongue at the back of your throat, these are not tonsil stones but just random white dots which i think are causing the smell. We can not see them if we just opened our mouths and looked in, because the are down/back of your throat.
Let me know if your ent or anybody else's find these white spots, then we need to find a way to get rid of them for good.

Sorry for long post

[StillHoping]

whatdidido - that sucks you have to wait soo long, did you ask them to get put on a cancellations list? Cuz that could get you a faster spot. I will pm you my ENT's details.

Recovery has not been bad for me at all; I was seriously expecting the worst from everything Ive been hearing, ie. people saying its the worst pain they ever experienced in their life etc. Maybe I just got lucky? But I would describe it more as annoying/ irritating as opposed to painful. It basically feels like a small ball is stuck in my throat with a dangling thread. Ofcourse I can't talk/ eat at this point and the worst part imo is the excess mucus in my throat that is hard to swallow.

You should definitely just get it all done in one shot; its best to do it all and get it over with at the same time. Don't be nervous because at the end you will be happy that atleast you have eliminated that area as a possible source.

Hopefully this juicing will have a positive effect on you, have you tried the lemon water at all? That's the hard part about BB- not knowing exactly when we smell or how bad, so we assume every reaction is towards us. It will be great that we can give each other an honest review; I would like to know how my BB is as a result from the surgery. Because my best friends to this day still swear I don't have BB, and I can never get an honest opinion from them

[whatdidido]

Sun123--
I actually can see white spots in the very very far back on my mouth!! My ENT put a camera down my nose and he said i definitely have irritation in my throat and my adenoids are inflamed so I'm not sure really if he acknowledged the white spots and thats what he meant by irritation or if he didn't see them, i will definitely follow up with him once i get in for my appt (Whenever the hell that may be)

StillHopeful--
My two best friends of more then twenty years won't say a word about my bb and carry on like its absolutely nothing, all the while covering their noses and staying a fair distance while i talk. lol bless their souls--they truly believe i don't know whats going on but what can you do, its a difficult thing to discuss and i completely understand that!!

I tried the lemon water thing and i felt like it was working but I'm unsure at this point. Juicing is going well so I'm just gonna continue doing this till i get my appt booked!!!

[StillHoping]

hey whatdidido; how is the juicing working for you, have you noticed any difference? I was going to try juicing but felt I couldn't afford it right now. I will be embarking on a simple dairy + gluten free diet instead; mostly eating veggies.

Was wondering if you would still want to meet up? I'm returning back to work next week and was hoping to get some feedback before then. I don't think my tonsil/adenoid surgery made a difference but itd be great to get a conclusive opinion from someone else. Let me know, thanks!

[whatdidido]

Hey StillHoping!

I would definitely be up to meeting whenever you are free, shoot me a private message and we can plan something.

Juicing was good actually but didn't help my bad breath at all. I think i wanted it to work so bad i was convincing myself that it was going to help. I still juice three juices a day but i had to start eating solid food to get through my workouts. Also, i got blood tests back yesterday and apparently I'm lactose intolerant..not sure how big of a role that plays as i eat dairy in minuscule amounts like once a month but I'm gonna stop having cheat ice cream and see what happens.

Why do you think your surgery didn't work? Reactions from people, self doubt etc?

[StillHoping]

oh wow, that's really too bad it made no difference. I would've thought it might help a bit but atleast you now know you can enjoy normal food without worrying it will affect your bb - soo I guess that's good in a way! Has a date been set for your surgery yet?

I can smell my own BB and did not notice any improvement after surgery. Also did not feel like the reactions lessened but then again what if its just due to self doubt? Im not sure.

Just sent you a pm

[StillHoping]

Hey, did you get my pm?

[whatdidido]

Surgery booked for October 21st for septoplasty, adenoid and palatine tonsil removal!! Im going from hopeless to hopeful so i'll let you all know how this goes. These past few weeks have been the worst I've had since this all started so having a surgery date after waiting for what will be over a year when the date comes is the pick me up i needed!!!

For those who have had the surgery and are now BB free, is there anything i should talk to my ENT about in regards to what i want him to look out for, or anything to include, things he should make sure to do while in there?

[StillHoping]

heyyyy congrats on finally getting a date! I truly believe/ hope this will be the answer for you. Might be best to go through 9 years adenoids thread for tips and stuff.

Btw, as you know I returned back to work and the reactions were definitely in full force

I guess the lemon water was not working for me as I had thought [wished]. Soo its back to square one again!