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Whether you think you have tmau or Not , we as the malodor community need to know and share our information when possible . This 2nd live webinar is for and by sufferers .
See (hear) you there
From Karen :
Hi everyone
Announcement of a TMAU/FMO3 webinar to take place Sunday 23rd September at 7pm GMT
TMAU/FMO3 webinar featuring Professor Ian Phillips & Professor Elizabeth Shephard
veteran researchers into FMO3 enzyme and TMAU.
webinar hosted by Rob Pleticha of rareconnect.org and Eurordis
The webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
If privacy is an issue enter as a guest or make up a username. no password needed.
Only 50 can be in the room at anytime
Webinar will be recorded and hosted on a public video platform afterwards
The guest speakers will present a talk then take questions from the audience afterwards.
Everyone welcome.
For full details see post in this blog : http://www.bloodbornebodyodorandhalitos ... m-est.html
For your timezone http://www.timezoneconverter.com/cgi-bin/tzc.tzc
Best wishes
Karen
http://www.timezoneconverter.com/cgi-bin/tzc.tzc
So as of the time of this posting, the seminar will begin 18 hours from now.
Webinar # 2
Hi everyone
Announcement of a TMAU/FMO3 webinar to take place Sunday 23rd September at 7pm GMT
TMAU/FMO3 webinar featuring Professor Ian Phillips & Professor Elizabeth Shephard
veteran researchers into FMO3 enzyme and TMAU.
webinar hosted by Rob Pleticha of rareconnect.org and Eurordis
The webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
If privacy is an issue enter as a guest or make up a username. no password needed.
Only 50 can be in the room at anytime
Webinar will be recorded and hosted on a public video platform afterwards
The guest speakers will present a talk then take questions from the audience afterwards.
Everyone welcome.
For full details see post in this blog : http://www.bloodbornebodyodorandhalitos ... m-est.html
For your timezone http://www.timezoneconverter.com/cgi-bin/tzc.tzc
Best wishes
Karen
3rd WEBINAR !
I think this webinar is going to be very informative as well.
We can ask our questions in advance at the RareConnect site, http://www.rareconnect.org/en/community ... pm-uk-time.
Post your questions for webinar with Dr Robin Lachmann : 28 Oct at 7pm UK time - Trimethylaminuria..
www.rareconnect.org
Post your questions for webinar with Dr Robin Lachmann : 28 Oct at 7pm UK time Meet, discuss & support other
BE THERE FOLKS
4th WEBINAR Today
If you ever wanted to know something about systemic bb or bo the rareconnect webinars are a great time to ask and share concerns ..Free
As we know ,99% of Dr are clueless about malodor and/or deny its importance in how powerfully it effects our lives and those around us. Ask a specialist on the subject and attend the webinar
eurordis.adobeconnect.com/_a830956913/rare_disease_communities/
more info : The 4th TMAU webinar is taking place on Sunday 2nd Dec at 7pm GMT (check your timezone against GMT). We are pleased to announce that the guest speaker will be Dr Richard Mackay of Christchurch, New Zealand. We are most grateful to him for generously fitting the webinar into his schedule which means he will be speaking at 8am on Monday 3rd Dec his time.
Dr Richard Mackay wrote an excellent overview about TMAU which was published in 2011
Trimethylaminuria : Causes and Diagnosis of a Socially Distressing Condition
The webinar will be a lecture followed by a question and answer session.
WEBINAR with DR PRETI from MONELL
5pm GMT (noon EST)
With guest speakers :
George Preti, Ph.D. (Monell Chemical Senses Center)
Paul Fennessey, Ph.D.(University of Colorado Health Sciences Center)
Danielle Reed, Ph.D. (Monell Chemical Senses Center)
since there are only 50 spots in the webinar room ,anyone is invited to post your questions and comments below .
more about them and the webinar :
Titles of slideshows :
Updates on genetics of trimethylaminuria (Danielle Reed)
TMAU : evaluation of individuals with malodor problems (Preti, Fennessey, Reed)
We are delighted to announce the upcoming webinar which will feature 2 researchers who have been eminent in researching and raising awareness of TMAU for many years : George Preti Phd and Dr Paul Fennessey. We are also delighted to have as a guest speaker Danielle Reed Phd, a geneticist at Monell Chemical Senses Center who is currently doing research into TMAU with the small grant awarded by NORD which was raised by the community (Danielle Reed and George Preti, “Revisiting TMAU through exome sequencing,” 1-year grant from the National Organization for Rare Disorders and the Trimethylaminuria Foundation). Everyone is welcome to attend though only 50 places are available. Permission has kindly been granted for the webinar to be recorded and made public.
About George Preti : Monell page for George Preti
Pubmed abstract on TMAU
About Paul Fennessey : Dr Paul Fennessey detail
Pubmed abstract on TMAU
About Danielle Reed : Wikipedia entry for Danielle Reed
Monell webpage for Danielle Reed
Webinar technical details :
Webinar room is here : http://eurordis.emea.acrobat.com/rare_d ... mmunities/
No need to use your real name. No password needed. Sign in as 'guest' if you wish
The webinar is being provided by rareconnect.org, part of Eurordis
Visit the rareconnect.org trimethylaminuria community