Out of The Blue
Posted: Mon Sep 01, 2014 3:48 pm
Hello Everyone,
Like most people I have lurked around this site for some time now , picking up tips on how to go about curing my bad breath but never posting, but today I am at my breaking point . I haven't spoken to anyone in a year since I've discovered my monster . Everyday I live in complete and utter pain and no one cares .They either pretend I don't exist or judge me and avoid me with one excuse or another . Either way I'm left isolated and alone and I'm starting to get comfortable with that which is a problem for someone like me because I use to be outgoing,outspoken,personable,and an all around good time . I use to work at a bank and had my own apartment and car. Now I am unemployed , unemployable and residing in a women's shelter in NYC,and believe me , no one can make you feel less than sh*t more than women who don't care about you,your feelings or your unique situation.Like stated this site as be a godsend and I've got some great advice and tips none of which worked but helped in discovering other ailments I probably wouldn't have noticed otherwise. Some of the at home remedies I used were :
(the obvious) scrubbing my teeth and tongue til they bled
every mouthwash available to me (all compounded the issue)
every toothpaste available ( again made it 100% WORSE)
baking soda
tea tree oil
peroxide
chlorophyll tablets
shaving my tongue with a razor
neti pot
urine therapy
gargling with bath soap
eliminating all dairy,chocolate, and peanut products from my diet (on the off chance it was allergy related..it isn't)
When I was 16 I caught my first case of tonsillitis and was sent to the ER and the nurse stuck a needle in my throat and drained my tonsils . Never thought about it again until last year when I had yet another tonsil infection. With that in mind and the odor getting increasingly worse I went to the doctor and lied about it being ongoing in order to have my tonsils removed all in all. I thought Hey , I'll kill two bird with one stone . I won't have to get a needle in my throat and my bad breath would vanish forever . But little did I know my problems to were just beginning.So now to the list of doctors and procedures they have ran on me to help combat this devil:
Palatine Tonsil Removal ( Prior to this surgery, I rated my bad breath at a 5-6 on a scale of 10 ,with some of the at home remedies helping to bring it to a 3-4..after the surgery I now rate the odor a 15-16 on scale of 10)
17 nasal endoscopies
5 dental visits ( which has seen 10 tooth removals..my teeth were in top notch condition but I was worried they were lying and I had tooth after tooth removed .. None of which cause the odor )
3 gastrointestinal endoscopies ( all showing no sign of acid reflux or ulcers but was still given antibiotics and ppi's as a way to shut me up and get me to never return.. I didn't take any of it . Just seems stupid to take something when there's nothing wrong in that part of your body)
thyroid sonogram
ct scan of the chest , abdomen and pelvis ( nothing came from this)
barrium swallow test ( to check for zenkers diverticulum )
Again,all in vain . Nothing is/has helped and now my odor is even overwhelming to me . I smell sewage and rotten eggs all the time and I'm sinking into the black hole known as depression. I no longer go to doctors looking for an answer because I know what it will be I think I go just to have someone to talk to. Days are turning into months and I see no light at the end of this tunnel. The stronger part of me wants to keep fighting like I'm getting closer to the finish line but the weaker part speaks louder and screams kill yourself. I've been seeing this one Ent who is not pleased with the idea of trying everything I bring to him but seems like he hasnt given up on me wants to help. He's a religious man and I think he feels obligated to help not because he practices medicine but like a pass into heaven or whatnot . Either way I'm grateful. In the upcoming months he's ordering a ct scan of the sinuses and a sleep study and only if nothing is produced from that will he consider the idea that my LINGUAL tonsils may have a part in it .
I came across an article on one of my many sleepless night that said that there was one case where a zenkers diverticulum pouch was posing as a thyroid nodule and was only detected after a FNA ( fine needle aspiration) . Now prior to this whole ordeal I've never had any lumps in my neck but in the year that I have been going thru this I have . On my right side just under my jawline . Everytime I squeeze it it produces the ugliest odor imaginable and then the odor isn't as bad . Because of the placement of the lump im not sure if its my lingual tonsils or a sneaky , incognito zenkers diverticulum pouch . In conclusion I've narrowed down my my problem to tmau,infected lingual tonsils or zenkers diverticulum .
Pls Help !
Like most people I have lurked around this site for some time now , picking up tips on how to go about curing my bad breath but never posting, but today I am at my breaking point . I haven't spoken to anyone in a year since I've discovered my monster . Everyday I live in complete and utter pain and no one cares .They either pretend I don't exist or judge me and avoid me with one excuse or another . Either way I'm left isolated and alone and I'm starting to get comfortable with that which is a problem for someone like me because I use to be outgoing,outspoken,personable,and an all around good time . I use to work at a bank and had my own apartment and car. Now I am unemployed , unemployable and residing in a women's shelter in NYC,and believe me , no one can make you feel less than sh*t more than women who don't care about you,your feelings or your unique situation.Like stated this site as be a godsend and I've got some great advice and tips none of which worked but helped in discovering other ailments I probably wouldn't have noticed otherwise. Some of the at home remedies I used were :
(the obvious) scrubbing my teeth and tongue til they bled
every mouthwash available to me (all compounded the issue)
every toothpaste available ( again made it 100% WORSE)
baking soda
tea tree oil
peroxide
chlorophyll tablets
shaving my tongue with a razor
neti pot
urine therapy
gargling with bath soap
eliminating all dairy,chocolate, and peanut products from my diet (on the off chance it was allergy related..it isn't)
When I was 16 I caught my first case of tonsillitis and was sent to the ER and the nurse stuck a needle in my throat and drained my tonsils . Never thought about it again until last year when I had yet another tonsil infection. With that in mind and the odor getting increasingly worse I went to the doctor and lied about it being ongoing in order to have my tonsils removed all in all. I thought Hey , I'll kill two bird with one stone . I won't have to get a needle in my throat and my bad breath would vanish forever . But little did I know my problems to were just beginning.So now to the list of doctors and procedures they have ran on me to help combat this devil:
Palatine Tonsil Removal ( Prior to this surgery, I rated my bad breath at a 5-6 on a scale of 10 ,with some of the at home remedies helping to bring it to a 3-4..after the surgery I now rate the odor a 15-16 on scale of 10)
17 nasal endoscopies
5 dental visits ( which has seen 10 tooth removals..my teeth were in top notch condition but I was worried they were lying and I had tooth after tooth removed .. None of which cause the odor )
3 gastrointestinal endoscopies ( all showing no sign of acid reflux or ulcers but was still given antibiotics and ppi's as a way to shut me up and get me to never return.. I didn't take any of it . Just seems stupid to take something when there's nothing wrong in that part of your body)
thyroid sonogram
ct scan of the chest , abdomen and pelvis ( nothing came from this)
barrium swallow test ( to check for zenkers diverticulum )
Again,all in vain . Nothing is/has helped and now my odor is even overwhelming to me . I smell sewage and rotten eggs all the time and I'm sinking into the black hole known as depression. I no longer go to doctors looking for an answer because I know what it will be I think I go just to have someone to talk to. Days are turning into months and I see no light at the end of this tunnel. The stronger part of me wants to keep fighting like I'm getting closer to the finish line but the weaker part speaks louder and screams kill yourself. I've been seeing this one Ent who is not pleased with the idea of trying everything I bring to him but seems like he hasnt given up on me wants to help. He's a religious man and I think he feels obligated to help not because he practices medicine but like a pass into heaven or whatnot . Either way I'm grateful. In the upcoming months he's ordering a ct scan of the sinuses and a sleep study and only if nothing is produced from that will he consider the idea that my LINGUAL tonsils may have a part in it .
I came across an article on one of my many sleepless night that said that there was one case where a zenkers diverticulum pouch was posing as a thyroid nodule and was only detected after a FNA ( fine needle aspiration) . Now prior to this whole ordeal I've never had any lumps in my neck but in the year that I have been going thru this I have . On my right side just under my jawline . Everytime I squeeze it it produces the ugliest odor imaginable and then the odor isn't as bad . Because of the placement of the lump im not sure if its my lingual tonsils or a sneaky , incognito zenkers diverticulum pouch . In conclusion I've narrowed down my my problem to tmau,infected lingual tonsils or zenkers diverticulum .
Pls Help !