What have I done so far
Posted: Sat Jun 06, 2015 9:46 am
Hi every one, I have just found this forum few weeks ago and I have decided to be part of it, I hope I can be helpful
I notice that I have this issue from Puberty. So I did like most people do; I went to the dentist; my teeth condition where not the best I had one root problem and few cavities. Fixed them all and started to focus more in my oral hygiene "mouthwash, floss, tongue brush". It wasn’t enough to solve the problem.
I started looking for the problem by myself. I placed a paper tissue over each teeth row on the top and sides bite it for few minutes and smell. By doing that I have noticed that the smell comes from my wisdom teeth although the dentist says he can’t see any problem with it (I did X-ray). I told him to just to remove it.
My breath improved afterwards but after one or two weeks I kept doing the tissue test and another tooth starting to have the same problem until I removed all wisdom teeth (although I used to take care of my oral hygiene). I also did Mouth swap; came clean.
Also another thing when I used to floss between my crown teeth I have noticed a weird smell. The dentist said that some people have allergy to metal crowns so I replaced it with another type and the other one wasn’t properly placed “it had gaps”.
I have noticed that I always had yellow/green mucus. ENT prescribed anti-biotic and other medication as they stated that I have some sort of Congestion on the top of my nose; the mucus reduced but not by much and became white. I also did MRI scan to check my sinuses; the report came clean. Also did Nasal Endoscopy he found the septum is deviated. And Checked my nasal for any infection (I don’t remember exactly how but the doctor took a tissue or something from my nose). I had white coating over my tongue the doctor prescribed syrup then pills “it wasn’t effective enough”.
Next I started looking at the back of my tongue using my finger where I noticed my tonsils had very bad odor, went to ENT doctor and decided to remove them. I after tonsillectomy I felt much better.
Next I went to a gastroenterologists doctor, I did the urea breath test for H. pylori; it turned out to be positive. Took medications did the test again it came negative.
I have always had sore taste in my mouth and burning sensation in the throat that in some nights I wake up brush my mouth to be able to sleep. I went to gastroenterologists did endoscopy and barium meal x-ray. I had severe acid reflex. The doctors said that my lower esophageal sphincter (LES) muscle is weak and some stated that I have hiatal hernia while some think I don’t. Any way I took gastro-resistant tablets for a long time but not much improvement, so I decided to do laparoscopic surgery.
After the laparoscopy I couldn’t smell much of bad breath and post nasal drip reduced dramatically and became almost transparent, I used to do fillings for my teeth from time to time (although I used to take care of my oral hygiene) this stopped after the surgery “most likely it was due to acid wear”
Next I went to pulmonologist; did high resolution CT to the lunge; Came clean.
Did liver test and my Bilirubin was high seen few doctors and all stated that I have Gilbert's syndrome (which is not known to cause any type of odor) other enzymes are normal. The kidney they say is good. I did Ultra sound for abdomen the doctor says he can`t see anything wrong. Also did blood test for diabetes (fasting plasma glucose “FPG”), Phosphorus levels and Uremia; all ok.
Recently I went to Doctor Murat in Turkey he told me that I have type 2(nasal) and type 4(breath “blood bone”) halitosis. Mainly I have type 4 he said as in type 2 he detected H2 (hydrogen) which is odorless but it indicates that there is some bacteria in the nasal cavity which he also noticed when he looked at my MRI SCAN but told me to properly seek ENT specialist to confirm it.
Recently as well I did TMAU test we don’t have this in our country I shipped a urine sample to the US (MEBO Research), the result will be out on the 1st of July.
Currently I am seeking gastroenterologists doctors to find the problem that causes type 4 halitosis. Now they took again few blood sample and they might do colonoscopy or try to take a tissue of the liver if the blood test shows something suspicions. Also the doctor told me to get Rifaximin from one of the countries not very close to ours. Currently I am taking Agiolax to regulate my bowel.
Next on my list is:
- SIBO, Lactose, Fructose and Sucrose hydrogen breath test. We don’t have this test going to get it online (already in contact with supplier).
-Candida overgrowth (did IgG only, not sure how to get the rest IgA, and IgM candida anti-bodies) or I might look for other ways for diagnosis.
-Septoplasty and remove the cause of type 2 alongside with adenoid.
-Plasma amino acids Test, not sure where can I do that or if it is enough to diagnosis these:
Glycine N-methyltransferase deficiency (hypermethionemia) / hypertyrosinemia / Phenylketonuria
-Same here have no idea how to check for these: MULTIPLE ACYL-CoA DEHYDROGENASE DEFICIENCY; MADD / Methionine adenosyltransferase deficiency
What do you think guys, is there is anything els I am missing, Please don’t hesitate to ask or suggest anything.
I notice that I have this issue from Puberty. So I did like most people do; I went to the dentist; my teeth condition where not the best I had one root problem and few cavities. Fixed them all and started to focus more in my oral hygiene "mouthwash, floss, tongue brush". It wasn’t enough to solve the problem.
I started looking for the problem by myself. I placed a paper tissue over each teeth row on the top and sides bite it for few minutes and smell. By doing that I have noticed that the smell comes from my wisdom teeth although the dentist says he can’t see any problem with it (I did X-ray). I told him to just to remove it.
My breath improved afterwards but after one or two weeks I kept doing the tissue test and another tooth starting to have the same problem until I removed all wisdom teeth (although I used to take care of my oral hygiene). I also did Mouth swap; came clean.
Also another thing when I used to floss between my crown teeth I have noticed a weird smell. The dentist said that some people have allergy to metal crowns so I replaced it with another type and the other one wasn’t properly placed “it had gaps”.
I have noticed that I always had yellow/green mucus. ENT prescribed anti-biotic and other medication as they stated that I have some sort of Congestion on the top of my nose; the mucus reduced but not by much and became white. I also did MRI scan to check my sinuses; the report came clean. Also did Nasal Endoscopy he found the septum is deviated. And Checked my nasal for any infection (I don’t remember exactly how but the doctor took a tissue or something from my nose). I had white coating over my tongue the doctor prescribed syrup then pills “it wasn’t effective enough”.
Next I started looking at the back of my tongue using my finger where I noticed my tonsils had very bad odor, went to ENT doctor and decided to remove them. I after tonsillectomy I felt much better.
Next I went to a gastroenterologists doctor, I did the urea breath test for H. pylori; it turned out to be positive. Took medications did the test again it came negative.
I have always had sore taste in my mouth and burning sensation in the throat that in some nights I wake up brush my mouth to be able to sleep. I went to gastroenterologists did endoscopy and barium meal x-ray. I had severe acid reflex. The doctors said that my lower esophageal sphincter (LES) muscle is weak and some stated that I have hiatal hernia while some think I don’t. Any way I took gastro-resistant tablets for a long time but not much improvement, so I decided to do laparoscopic surgery.
After the laparoscopy I couldn’t smell much of bad breath and post nasal drip reduced dramatically and became almost transparent, I used to do fillings for my teeth from time to time (although I used to take care of my oral hygiene) this stopped after the surgery “most likely it was due to acid wear”
Next I went to pulmonologist; did high resolution CT to the lunge; Came clean.
Did liver test and my Bilirubin was high seen few doctors and all stated that I have Gilbert's syndrome (which is not known to cause any type of odor) other enzymes are normal. The kidney they say is good. I did Ultra sound for abdomen the doctor says he can`t see anything wrong. Also did blood test for diabetes (fasting plasma glucose “FPG”), Phosphorus levels and Uremia; all ok.
Recently I went to Doctor Murat in Turkey he told me that I have type 2(nasal) and type 4(breath “blood bone”) halitosis. Mainly I have type 4 he said as in type 2 he detected H2 (hydrogen) which is odorless but it indicates that there is some bacteria in the nasal cavity which he also noticed when he looked at my MRI SCAN but told me to properly seek ENT specialist to confirm it.
Recently as well I did TMAU test we don’t have this in our country I shipped a urine sample to the US (MEBO Research), the result will be out on the 1st of July.
Currently I am seeking gastroenterologists doctors to find the problem that causes type 4 halitosis. Now they took again few blood sample and they might do colonoscopy or try to take a tissue of the liver if the blood test shows something suspicions. Also the doctor told me to get Rifaximin from one of the countries not very close to ours. Currently I am taking Agiolax to regulate my bowel.
Next on my list is:
- SIBO, Lactose, Fructose and Sucrose hydrogen breath test. We don’t have this test going to get it online (already in contact with supplier).
-Candida overgrowth (did IgG only, not sure how to get the rest IgA, and IgM candida anti-bodies) or I might look for other ways for diagnosis.
-Septoplasty and remove the cause of type 2 alongside with adenoid.
-Plasma amino acids Test, not sure where can I do that or if it is enough to diagnosis these:
Glycine N-methyltransferase deficiency (hypermethionemia) / hypertyrosinemia / Phenylketonuria
-Same here have no idea how to check for these: MULTIPLE ACYL-CoA DEHYDROGENASE DEFICIENCY; MADD / Methionine adenosyltransferase deficiency
What do you think guys, is there is anything els I am missing, Please don’t hesitate to ask or suggest anything.